Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study
ECTRIMS Online Library. Kamm C. Sep 11, 2019; 278711; P349
Christian Philipp Kamm
Christian Philipp Kamm
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Abstract

Abstract: P349

Type: Poster Sessions

Abstract Category: Clinical aspects of MS - Diagnosis and differential diagnosis

C.P. Kamm1,2, L. Barin3,4, A. Salmen2, S. Schippling5,6, P. Calabrese7, V. von Wyl3, Swiss Multiple Sclerosis Registry

1Neurocenter, Lucerne Cantonal Hospital, Lucerne, 2Department of Neurology, Inselspital, Bern University Hospital and University of Bern, Bern, 3Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland, 4Research Institute for the Evaluation of Public Policies (FBK-IRVAPP), Trento, Italy, 5Neuroimmunology and Multiple Sclerosis Research, Department of Neurology, University Hospital Zurich and University of Zurich, 6Center for Neuroscience Zurich, University of Zurich and Federal Institute of Technology (ETH) Zurich, Zurich, 7Division of Molecular and Cognitive Neuroscience, University of Basel, Basel, Switzerland

Background: Patient satisfaction is predictive of adherence, malpractice litigation, and doctor-switching. Satisfaction with the first diagnostic consultation (FDC) in persons with multiple sclerosis (PwMS) has rarely been studied. We therefore investigated which factors of the FDC influence patient satisfaction and which topics PwMS thought were missing.
Methods: Using retrospective patient-reported data of the Swiss Multiple Sclerosis (MS) Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors.
Results: 386 PwMS diagnosed after 1995 were included. 54% of participants were satisfied with the FDC, 22% were neutral, and 24% were not satisfied.
In multivariable ordered logistic regression, good satisfaction with the FDC was associated with a conversation of at least 20 minutes (multivariable Odds Ratio [95% confidence interval 3.9 [2.42;6.27]), covering many MS relevant topics (1.35 [1.19;1.54] per additional topic), the presence of a close relative or a significant other (1.74 [1.03;2.94]), and shared decision making with regard to future DMT (3.39 [1.74;6.59]). By contrast, not receiving a specific diagnosis was a main driver for low patient satisfaction with the FDC (0.29 [0.15;0.55]). Main missing topics concerned life consequences (reported by 6.7%), psychological aspects (6.2%), how to obtain support and further information regarding therapies and prognosis of MS (5.2%).
Conclusions: A conversation of more than 20 minutes covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or a significant other, as well as shared decision making enhanced patient satisfaction with the FDC in PwMS.
Disclosure: The Swiss Multiple Sclerosis Registry is funded by the Swiss Multiple Sclerosis Society.
Christian Philipp Kamm has nothing to declare. Laura Barin has nothing to declare.
Anke Salmen declares speaker honoraria and/or travel compensation for activities with Almirall Hermal GmbH, Biogen, Merck, Novartis, Roche and Sanofi Genzyme, not related to this work.
Viktor von Wyl has nothing to declare.
Sven Schippling reports compensation for consulting, serving on scientific advisory boards, speaking, or other activities from Biogen, Celgene, Merck, Sanofi and TEVA.
Pasquale Calabrese has received honoraria for speaking at scientific meetings, serving at scientific advisory boards and consulting activities from Abbvie, Actelion, Almirall, Bayer-Schering, Biogen, EISAI, Lundbeck, Merck Serono, Novartis, Sanofi-Aventis and Teva. He also receives research Grants from the Swiss Multiple Sclerosis Society (SMSG), and the Swiss National Research Foundation.
Authors Christian Philipp Kamm and Laura Barin contributed equally.

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